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"I have MS, but MS does non have me"

Every day, I wake up just like everyone else and see the dominicus shining and the birds chirping and have the promise of the entire day set before me – 24 hours, ane,440 minutes – only similar everyone else. The just thing that makes my waking up a little different than your waking up is that I have multiple sclerosis (MS), but MS does not have ME. I believe in the poem "It Couldn't Exist Washed" by Edgar Albert Guest:

Somebody said that it couldn't be done

Just he with a chuckle replied

That "peradventure information technology couldn't," only he would be one

Who wouldn't say so till he'd tried.

MS is just on the journey with me to do what is office of my DNA – teach, mentor and atomic number 82. These three things have been part of my life career as a retired captain in the U.Due south. Air Force and a community volunteer. You tin can practise anything you ready your mind to do and like any challenge, you lot get to decide every day how you will overcome the obstacle.

I have a "use it or lose it" philosophy about the cognitive and physical aspects of my disease. We all take a bank of mental and physical energy with which to get information technology done – and every day we get a new deposit to spend afresh. Life with MS is a pick to be salubrious and to choose how to spend my energy account. I have learned to listen to my body and know how to space out my activities to maximize my output for the results I seek to achieve, whether it is jubilant the centennial of my fraternity, Omega Psi Phi Fraternity, Inc., serving as the Gateway MS Ambassador, or giving out over 15,000 school numberless to students in the St. Louis Public Schools, I choose how to maximize my energy resource.

When I wake up and my torso or my mind act similar they want to hold me dorsum, I remind them that I am directing this destiny and I do not say "I tin can't," because "can't" only means "constant human activity of non trying." I refuse to allow that be a part of my life story. It may mean that I choose to practise one or two things instead of the three or four that I might normally do, but I continue on and then can you. MS ways "MOST STUFF" to me, that on well-nigh days I can do nigh things.

You have a selection, remember that, you did not choose MS, just you lot do get to cull how you lot volition handle MS. Living with a chronic illness is but limiting if you believe "I can't" instead of "I can." You must monitor your energy level, recall of your longevity, and go on your mind sharp. Read a book, go to museums, claiming yourself with a new task, eat a good for you diet, and exercise daily. I choose every day to put one foot in front of the other and use my 24 hours for the greatest good instead of allowing MS to terminate me.

MS besides challenges our cognitive abilities and I choose every mean solar day how to keep my mind sharp. I go on decorated through volunteering with the Oasis Intergenerational Tutoring Reading Program, forth with my piece of work with VA, and serving as the Upsilon Omega Foundation vice president and the Omega Centre, a community service center, managing director. As an agile member of my fraternity, I was challenged in 2011 to programme a huge centennial conference in St. Louis, some thought it couldn't exist done, only "I DID IT!"

What tin life with MS wait like? Information technology looks like a man who was area helm for four states and who traveled to make history. It looks like a man, for the second fourth dimension, who donned a tuxedo to attend the countdown balls for the nation'south re-elected showtime black president. Information technology looks similar a human sitting proudly in the blue section of the countdown ceremony. It looks like a human being who mentors through the Boys and Girls Club, who reads at Lexington Elementary School, and who recruits through Squad 100. It looks like 1,440 minutes of "I Tin can."

Every new day is a new opportunity to be greater than your limitations. Call back, "I take MS, MS does non take me."


Virtually the author:  This article was submitted past Philip White (as told to Taye Foster Bradshaw). Captain (Ret). Philip White is a native of St. Louis, Missouri. For 26 years he served proudly with the United states Air Force, stationed in several U.S. posts and countries including Korea, Japan, Philippines,and Germany. Following his retirement from armed forces service, he returned to his educational activity roots at Whitman Air Force Base, accepting a position as managing director of Air Strength Junior Reserve Officeholder Grooming Corps (AFJROTC). Later on retiring from his position as director, he accepted a volunteer position every bit a fellow member of Team 100, with Oasis Intergenerational Tutoring.

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Published on Mar. three, 2016

Estimated reading time is 4.i min.

4 Comments

  1. Our 43 year onetime daughter has had MS since she was 23…She has worked all those years, but now has had to accept she can no longer piece of work and receives dis ability…(hardly enough to live on)

    Her Dad was a 1st Lt stationed in Viet Nam for over a year…..slept in the fields,crawled in the mud,showered with stink h2o…cooked on open fires…twenty years later on a small disability "accolade" was given to him……Many children of the "amanuensis Orange" vets has disabilites….the treat ments are very expensive…our child has to have an infusion once a month to go her up and moving..and to avoid a wheel chair for the residual of her life…We assist her with the cost of the infusions…$12.000 a month…medicare pays very little of it…disability pays none of it. I accept called and wrote to every authorities part listed anywhere I could discover…Not Fifty-fifty A CALL OR LETTER Dorsum !!
    I would similar to know if she can get help from the VA with the costs of specialists and infusion. I would appreciate an answer or advice…Our saving have been depleted..I AM At present BEGGING !

    • Megan Moloney March v, 2016 at 7:27 pm

      Mary, take a look at some of the information on this page http://explore.va.gov/spouses-dependents-survivors and and then consider reaching out to a Veterans Service Organization or your local Veteran Service Officer to encounter if they can aid you determine whether to file a merits with VA.

      • d darragh March 6, 2016 at 6:48 pm

        This women says she wrote or chosen everywhere and y'all genreously chose to give her a atomic number 82. Unfortunately, that's sometimes what Vets become for an answer and then nosotros find out, "oh yeah I already that"/ It's Extremely Frustrating. Megan, if you have pull with anyone on this, delight help this wonderful adult female.

  2. Patrice DeWitt March four, 2016 at 3:41 pm

    Does existence a vet make getting a passport easier/cheaper?

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Ms Sql Server 2008 Express Edition,

Source: https://blogs.va.gov/VAntage/26091/i-have-ms-but-ms-does-not-have-me/

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